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24-HOUR MH HOTLINE

800-644-9737

Outside NA: 001-209-417-3722
FOR EMERGENCIES ONLY

24-HOUR MH HOTLINE: 800-644-9737
Outside NA: 001-209-417-3722
FOR EMERGENCIES ONLY

I Have MH - Now What?

I Have MH - Now What?

A Roadmap To Answers

TELL ME……

  • What does this mean to me and my family?
  • Where can we find helpful resources and information?
  • What is the difference between an MH muscle biopsy and MH genetic test?
  • Which test is the best choice for me?

First, you have options as to how to proceed and your personal preferences will govern which option you choose to pursue. Reading this resource is a good start:

TABLE OF CONTENTS

  • I am MH-susceptible (MHS) – NOW WHAT?
  • North American MH Registry of MHAUS Information
  • Connecting with Other MHS Individuals
  • What are my Options?
  • Muscle Biopsy Testing Information
  • MH Genetic Testing Information
  • Insurance Coverage Information
  • Genetic Counselor Information and Resource
  • "I Don’t Want to be Tested" Considerations
  • Healthcare Professionals Information
  • MH Hotline and MHAUS Administration Info
  • Additional Resource(s)
  • Patient Safety Checklist
  • Triggering Anesthetics - Do Not Use

 

I Have MH - Now What?
I Have MH - Now What?
MH Roadmap Final July 2014 - PDF.pdf …

see also

SAMPLE LETTER: Letter of Medical Necessity to insurance company
SAMPLE LETTER: Letter of Medical Necessity to insurance company

Use to request prior authorization for genetic testing from insurance companies. PDF format.

SAMPLE LETTER: Request for Medical Records
SAMPLE LETTER: Request for Medical Records

Sample letter to the hospital's medical records department.  PDF format.

SAMPLE LETTER: CHCT Test Form
SAMPLE LETTER: CHCT Test Form

PDF Format.

The mission of MHAUS is to promote optimum care and
scientific understanding of MH and related disorders.