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24-HOUR MH HOTLINE

800-644-9737

Outside NA: 001-209-417-3722
FOR EMERGENCIES ONLY

24-HOUR MH HOTLINE: 800-644-9737
Outside NA: 001-209-417-3722
FOR EMERGENCIES ONLY

Blog

Blog

Regular updates by our President, MHAUS staff, and guest contributors.

The claims and opinions expressed in website blogs are those of the authors and not necessarily the views or opinions of MHAUS, its staff or its advertisers.

MHAUS President’s Challenge Nearly Met!
Dianne Daugherty, MHAUS Executive Director
February 3, 2015
Were you interested to know the results of the MHAUS President’s Challenge issued toward the end of November 2014 and was open through December 25, 2014 The challenge was ALMOST met completely!  We received donations equaling about 90% of the challenge, or $4,480.  Thus, the total amount received will be …
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Fiscal Year 2013-2014 Year End Review
Dr. Henry Rosenberg MD, CPE
December 31, 2014
As the calendar year comes to a close, I would like to take a few minutes of your time to highlight some of the activities and programs that MHAUS has either introduced or amplified over the past year and point out some of the scientific advances related to MH and …
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Remarks made at the MHAUS reception, December 14, 2014
MHAUS Staff
December 29, 2014
I would like to welcome you to the first MHAUS reception at the NY Post Graduate Assembly. Thank you all for coming. Particular thanks go to Eagle Pharmaceuticals, the company that developed and introduced Ryanodex, a new formulation of dantrolene introduced into clinical practice this past summer which is perhaps …
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Recommendation for Temperature Monitoring during General Anesthesia
MHAUS Staff
November 26, 2014
Recommendation: MHAUS recommends core temperature monitoring for all patients given general anesthesia lasting more than 30 minutes. Appropriate sites for continuous electronic core temperature monitoring include the esophagus, nasopharynx, tympanic membrane (with probe in contact with the membrane), bladder, and the pulmonary artery. Background: Malignant hyperthermia (MH) is an inherited …
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Advances in Diagnostic Molecular Genetics and the Implications for Malignant Hyperthermia
Dr. Henry Rosenberg MD, CPE
August 26, 2014
Very recently, the Institute of Medicine, an independent, nonprofit, non-governmental prestigious "think tank" composed of eminent scholars published the proceedings of a roundtable discussion on "Translating Genomic-Based Research for Health".  In other words, "How do physicians and scientists make sense of the large amount of information that is derived from …
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Rare Disorder Roadmap to Testing Options and Answers
Dianne Daugherty, MHAUS Executive Director
August 5, 2014

Although malignant hyperthermia (MH) is an uncommon disorder, when it happens to you or your family member, it becomes a frequent and common topic of concern and animated conversation.

Thus, when one of our family members requested the Malignant Hyperthermia Association of the United States (MHAUS) develop a resource to begin to answer questions that regularly rose to the forefront when a family is given an unexpected diagnosis of malignant hyperthermia .  As this diagnosis could come from within the patient’s immediate family or their extended family members, the basic question seemed to remain the same, "I have been told I have malignant hyperthermia – now what does that mean for my life?" 

MHAUS felt this was a very important and recurring area of concern not only for the MH-susceptible individual, but also for their healthcare providers across many disciplines.  To address this need, in mid-September 2013, we gathered a group of dedicated individuals from both the healthcare professional and the patient side to work together on the project we called "MH Genetics 101".  The group contained MHAUS staff, a genetic counselor who was also an MH-susceptible individual, a parent who tragically lost his child to MH, personnel from one of the genetic testing centers and one of their genetic counselors, as well as a board member who happens to be a genetic expert and is known worldwide.  Additionally, the final document went through a number of iterations after receiving input and perspective from MHAUS Professional Advisory Council members and other MH experts.

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European MH Group Meeting Blog
Dr. Henry Rosenberg MD, CPE
June 16, 2014
May 15-17, 2014 The European MH Group consisting of clinicians and scientists interested in and studying MH and related disorders met in the beautiful town of Wurzburg, Germany, in the northern part of Bavaria. Wurzburg was the home of Dr. Wilhelm Conrad Roentgen, who discovered x-rays and was the first …
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The Malignant Hyperthermia Registry from an SRNA’s Point of View
Guest Contributor
May 16, 2014
I am currently a second year nurse anesthesia student at the University of Pittsburgh who had a wonderful opportunity to work alongside some of the most dedicated professionals I have ever met. I spent approximately 60 hours assisting at the North American Malignant Hyperthermia Registry (NAMHR) in Pittsburgh, PA as …
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Far Reaching New Information Concerning the Diagnosis and Management of MH and Exertional Heat Stroke
Dr. Henry Rosenberg MD, CPE
March 20, 2014
I believe that it is now safe to conclude that a significant percent of patients who experience heat stroke are MH susceptible according to the testing procedures currently available. One of the implications of this finding bears on the new formulation of dantrolene.
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What does it take to educate people about Malignant Hyperthermia (MH)?
Sharon J. Hirshey Dirksen, Ph.D.
June 20, 2013
It is hard to believe that a year has passed since I stopped working for MHAUS and started to teach writing at the college level. So, when I was invited to write a blog about my experience working for MHAUS as Scientific Officer (from 2007-2012), I thought, that might be …
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My Time at the North American Malignant Hyperthermia Registry: A Student Nurse Anesthestist’s Perspective
Valerie Pomerantz RN, BSN
May 14, 2013
I recently had the opportunity to participate at the North American Malignant Hyperthermia Registry (NAMHR) as part of my Research Practicum course at the University of Pittsburgh Nurse Anesthesia Program.
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Association of Operating Room Nurses Meeting
Dianne Daugherty, MHAUS Executive Director
March 25, 2013
We arrived in San Diego to beautiful weather and sunshine, a welcome change from Upstate New York's overcast and wintry seasonal weather. Once we checked into our hotel and got our bearings, we set up the exhibit booth with anticipation of receiving visits from many of the over 5,000 attendees there. We were not disappointed!
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Geoff Keller Celebration Concert - Atlanta, GA
MHAUS Staff
February 8, 2013
Celebrating the life of Geoff Keller Link to Event Link to Donate the Geoffrey Warren Keller Fund Link to Geoff Keller Group Page Celebrate the life of Geoff Keller and build awareness about malignant hyperthermia with his family and friends at The Glenn Memorial United Methodist Church, Emory Campus, 1660 …
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Malignant Hyperthermia Trigger Drug May Be Replaced
MHAUS Staff
February 1, 2013
by MHAUS President Henry Rosenberg, MD One of the most useful drugs in the armamentarium of anesthesia providers, and emergency medicine physicians is succinylcholine (also called Anectine). Succinylcholine is a drug that produces intense paralysis within seconds of injection which lasts (in most patients) for about 5-8 minutes. This is …
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MHAUS Board of Directors Welcomes Georgirene Vladutiu PhD
MHAUS Staff
January 29, 2013
Malignant Hyperthermia Association of the United States welcomes Georgirene Vladutiu Ph.D. of State University of New York at Buffalo to the MHAUS Board of Directors. Dr. Vladutiu is Professor of Pediatrics, Neurology and Pathology & Anatomical Sciences at the State University of New York at Buffalo where she is the …
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MHAUS President Henry Rosenberg, MD talks with OpenAnesthesia
MHAUS Staff
January 25, 2013
MHAUS President Henry Rosenberg, MD talks with Edward Nemergut, MD of OpenAnesthesia.org about malignant hyperthermia during an interview that was recorded in January. Click this link to listen. About OpenAnesthesia: OpenAnesthesia (OA), sponsored by the International Anesthesia Research Society, is an online multimodal toolkit specifically designed to advance graduate medical education in …
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Should You Stock Dantrolene?
MHAUS Staff
January 4, 2013
Should You Stock Dantrolene If you use succinylcholine or anesthesia, the answer is yes. See this article written by Shanie Wasek and published by Outpatient Surgery for more information. Healthcare facilities that use succinylcholine should always stock dantrolene to treat potential episodes of malignant hyperthermia (MH), according to research in the latest Anesthesia & …
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Important developments and changes at MHAUS
MHAUS Staff
January 2, 2013
by MHAUS President Henry Rosenberg, MD With this communication, "The President's Blog" will come to an end. No, it is not because I have decided to do other things or have nothing more to say, it is because I believe that this blog or forum should be open to others …
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Six-Year-Old Death in the Emergency Department
MHAUS Staff
December 29, 2012
Death in the Emergency Department: An Unrecognized Awake Malignant Hyperthermia-Like Reaction in a Six-Year-Old. This abstract was published by Anesthesia & Analgesia; click link for more information. A healthy 6-year-old boy developed lower extremity rigidity, trismus, and fever after playing in a splash pool. On arrival in the emergency department, …
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Pennsylvania Patient Safety Authority Receives Letter
MHAUS Staff
December 17, 2012
Pennsylvania Patient Safety Authority Receives Letter to the Editor About Malignant Hyperthermia. Pa Patient Saf Advis 2012 Dec;9(4):152. Click here to see original post. I wish to thank you and to applaud you for the efforts that you have made to improve patient safety within your state and for making your information available …
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The mission of MHAUS is to promote optimum care and
scientific understanding of MH and related disorders.