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MHAUS Blog

Advances in Diagnostic Molecular Genetics and the Implications for Malignant Hyperthermia

by Dr. Henry Rosenberg MD, CPE

Tuesday, August 26, 2014 /

Tagged: General ·

Very recently, the Institute of Medicine, an independent, nonprofit, non-governmental prestigious "think tank" composed of eminent scholars published the proceedings of a roundtable discussion on "Translating Genomic-Based Research for Health".  In other words, "How do physicians and scientists make sense of the large amount of information that is derived from …

0 Comments · 1344 words · est. read time: 7 minutes · Read and Comment »

Malignant Hyperthermia Experts Get Ready To Discuss Ryanodex®

by MHAUS Staff

Friday, August 22, 2014 /

Tagged: General ·

Malignant Hyperthermia experts will discuss Ryanodex® and other topics at a planned meeting this September 20 and 21 in Chicago, Illinois. At the meeting MH experts will talk on how the administration of Ryanodex® might affect MHAUS’ Emergency Therapy for Malignant Hyperthermia now being used by ambulatory surgery centers, hospitals, …

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Rare Disorder Roadmap to Testing Options and Answers

by Dianne Daugherty, MHAUS Executive Director

Tuesday, August 5, 2014 /

Tagged: General ·

Although malignant hyperthermia (MH) is an uncommon disorder, when it happens to you or your family member, it becomes a frequent and common topic of concern and animated conversation. Thus, when one of our family members requested the Malignant Hyperthermia Association of the United States (MHAUS) develop a resource to …

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European MH Group Meeting Blog

by Dr. Henry Rosenberg MD, CPE

Monday, June 16, 2014 /

Tagged: General ·

May 15-17, 2014 The European MH Group consisting of clinicians and scientists interested in and studying MH and related disorders met in the beautiful town of Wurzburg, Germany, in the northern part of Bavaria. Wurzburg was the home of Dr. Wilhelm Conrad Roentgen, who discovered x-rays and was the first …

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The Malignant Hyperthermia Registry from an SRNA’s Point of View

by Guest Contributor

Friday, May 16, 2014 /

Tagged: General ·

I am currently a second year nurse anesthesia student at the University of Pittsburgh who had a wonderful opportunity to work alongside some of the most dedicated professionals I have ever met. I spent approximately 60 hours assisting at the North American Malignant Hyperthermia Registry (NAMHR) in Pittsburgh, PA as …

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Far Reaching New Information Concerning the Diagnosis and Management of MH and Exertional Heat Stroke

by Dr. Henry Rosenberg MD, CPE

Thursday, March 20, 2014 /

Tagged: General · Update on MH and MHAUS ·

The views expressed in this posting are mine alone and do not necessarily represent the views of other professionals or Board Members of MHAUS. A “new “ dantrolene?  In 1979 dantrolene was approved by the FDA for the treatment of Malignant Hyperthermia. Dantrium (dantrolene)  was developed by a small company …

5 Comments · 1315 words · est. read time: 7 minutes · Read and Comment »

President's Report

by Dr. Henry Rosenberg MD, CPE

Monday, October 28, 2013 /

Tagged: General · Update on MH and MHAUS ·

President’s Report October 2013 Henry Rosenberg MD  It has been some months since I last drafted a blog for the MH community.  It was not because there was little to report, but rather because I was occupied with a variety of tasks related to my “day job” as Director of …

0 Comments · 1692 words · est. read time: 8 minutes · Read and Comment »

What does it take to educate people about Malignant Hyperthermia (MH)?

by Sharon J. Hirshey Dirksen, Ph.D.

Thursday, June 20, 2013 /

Tagged: General ·

It is hard to believe that a year has passed since I stopped working for MHAUS and started to teach writing at the college level. So, when I was invited to write a blog about my experience working for MHAUS as Scientific Officer (from 2007-2012), I thought, that might be …

6 Comments · 1281 words · est. read time: 6 minutes · Read and Comment »

My Time at the North American Malignant Hyperthermia Registry: A Student Nurse Anesthestist’s Perspective

by Valerie Pomerantz RN, BSN

Tuesday, May 14, 2013 /

Tagged: General ·

I recently had the opportunity to participate at the North American Malignant Hyperthermia Registry (NAMHR) 1 as part of my Research Practicum course at the University of Pittsburgh Nurse Anesthesia Program 2 .  I was able to learn about NAMHR and the registration process as well as gain a more …

2 Comments · 1101 words · est. read time: 6 minutes · Read and Comment »

Association of Operating Room Nurses Meeting

by Dianne Daugherty, MHAUS Executive Director

Monday, March 25, 2013 /

Tagged: General ·

We arrived in San Diego to beautiful weather and sunshine, a welcome change from Upstate New York's overcast and wintry seasonal weather. Once we checked into our hotel and got our bearings, we set up the exhibit booth with anticipation of receiving visits from many of the over 5,000 attendees …

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