Malignant Hyperthermia (MH) is an inherited muscle disorder triggered by certain types of anesthesia that may cause a fast-acting life-threatening crisis.
The incidence of MH is low, but, if untreated, the mortality rate is high. Great advances in our understanding of MH have been made since it was first recognized in the early 1960s, but the nature of the fundamental defect(s) is still unknown.
Frequently Asked Questions
- About MH, What is it?
- Anesthetics
- Associated Disorders
- Causes of an MH Episode?
- ID Tags Program and why wear one?
- MH Outside the Operating Room
- Links between MH and other disorders
- FAQs for patients and families
- Glossary
- Sample letters to family, medical facility, and insurance co.
- Testing for MH
- Treating MH
MH Registry
The North American Malignant Hyperthermia Registry of MHAUS helps us to understand MH by recording the family health histories and testing results of MH patients and their families and then researching the data. Registry functions are consistent with HIPAA, OHRP, and IRB regulations and data can be used to conduct research.
Patient Liaison Committee
The Patient Liaison Committee (PLC) serves the needs of MH-susceptible individuals and their family. The members provide educational materials, access to MH expert consultants, and a support network. It functions as an outreach for one-on-one contacts for individuals who would like to talk to someone with similar experience. The committee members are volunteers who either have MH personally or a family member is MH-susceptible, medical professionals, and others interested in MH. PLC initiatives include:
- Chapter Groups the build awareness through social activities in your area.
- Faces of MH are stories told by survivors to help us understand MH.
- March is MH Awareness and Training Month highlight of Chapter Group activities.
- MH Let’s Save a Life One-Day Conference where medical professionals sit side-by-side with patients learning from MH experts and from each other.
En Espanol
- Que es la Hipertermia Maligna? (What is MH?)
- QUE ES MHAUS? (What is MHAUS?)
- Monitorización de la temperatura en el periodo perioperatorio – Por qué, Donde y Como? – Nuevo (Temperature Monitoring)
- MANEJO DE LA HM (Clinical Update-Managing MH)
- HIPERTERMIA MALIGNA UN PROBLEMA TAMBIEN EN ODONTOLOGIA & CIRUGIA ORAL Y MAXILOFACIAL (Dentistry & Oral Surgery)
- Manejando la HM: Drogas, Equipo, y Dantrolene Sodico (Drugs, Equipment, and Dantrolene)
- Prevención de la HM: un protocolo anestésico (Preventing MH)
- Preguntas y respuestas frecuentes con relación a la Prueba de Genética Molecular para detectar la Hipertermia Maligna (Molecular Genetic Testing)
