Sherburne, NY – Malignant Hyperthermia is often experienced in individuals undergoing, what was expected to be, routine surgery but can also happen to a person outside of the operating room. Malignant Hyperthermia is an autosomal dominant genetic disorder found in an estimated 1 out of 2,000 people. Once triggered, the rapid progressive series of chain events include a body temperature of up to 107 degrees, muscle rigidity, system-wide organ failure, and, if untreated, eventual death. The incidence of MH is low, but, if untreated, the mortality rate is high. Introduction of a treatment drug and advances in the understanding of MH have saved many lives since the syndrome was first described in the 1960s.
Healthcare Professionals are encouraged to keep MH training current in order to rapidly recognize and diagnose the disorder and to maintain an appropriate supply of the drugs and equipment needed to successfully treat a MH emergency and plans to transport a MH-suspected patient.
Patients and Families are encouraged to document their health history and wear identification tags that can alert healthcare professionals to the disorder and work together with healthcare professionals in their community to build awareness about Malignant Hyperthermia.
A celebration concert in Atlanta Georgia was announced by the Geoff Keller Chapter Group of the Malignant Hyperthermia Association of the United States to remember the life of namesake Geoff Keller with his family and friends and build awareness about Malignant Hyperthermia. The concert is set for March 13, 2013 at 6:30 PM at The Glenn Memorial United Methodist Church, Emory Campus, 1660 North Decatur Road, Atlanta, GA. Featured are “The Druid Hills Billys”, a Bluegrass band comprised of Atlanta-based doctors. Another concert is being being planned in Peoria, Illinois on April 21st. Find more details at http://my.mhaus.org/group/GeoffKeller
MHAUS is asking healthcare professionals and Patients and Families to express their support for MH Awareness and Training Month on the MHAUS Facebook Page.
MHAUS was founded by families who lost their children to MH and could not find information about MH. In 1981 they found each other – and a doctor performing MH testing – and agreed “to make current information about MH available to all who need it.”
MH is genetic disorder found in an estimated 1 out of 2,000 people. MH is often experienced in individuals undergoing routine surgery triggered by certain anesthesia, but in rare cases MH can happen without anesthesia. Symptoms include body temperature of up to 107 degrees, muscle rigidity, system-wide organ failure, and, if untreated, eventual death.
Today MHAUS provides information and resources to medical and lay communities through conferences, educational materials , the 24-hour MH Hotline that provides healthcare professionals with free access to experts that specialize in MH crisis treatment, and the MHAUS website . Information is developed by the most informed anesthesia care providers in the world affiliated with MHAUS.
The mission of MHAUS is to promote optimum care and scientific understanding of MH and related disorders. MH episodes can happen at any time. MHAUS can help you prepare before it’s too late.