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"MH Death"

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by: Miranda
on 8/27/2007 at 3:52:56 PM

I was just wondering if anyone on this message board had ever had anyone in their family die as a result of MH. I lost my father (age 22) and my uncle (age 23) both to MH in the early 1980's. I have never been tested, I know I need to though. Just wondering if anyone else had a story to share. Thanks......


by: Steve
on 8/27/2007 at 11:33:05 PM

Miranda,

Hey there....

I have not known anyone to die from MH...

That being said, I'm sorry to hear of your losses...

Best wishes to you,

Steve


by: Michelle
on 9/1/2007 at 1:03:56 AM

I have had an aunt who died from MH during an Appendix operation while in the Navy, at a Navy Hospital in 1965. We didn't know about Malignant Hyperthermia until I almost died during surgery and her autopsy report was ordered when questioned if any others in the family ever had a surgery mishap. I spent a week in ICU and lost all my muscle control and was paralyzed for a few days. My CPK Level was over 23,000. Normal is 200. Took my quite a while to come back from that. Since then everyone in my family has been tested and we all have it. Michelle


by: Mrs. Dee
on 9/3/2007 at 10:50:18 PM

My mother passed away from MH. She was going in for some dental work. She was 26 yrs old. We were told of our MH status in the late seventies when my Granny (her mother who raised me) needed bypass surgery and the anesthesiologist recognized the family name. The anesthesiologist was a researcher in MH and had come across my mother case.

My cousin also passed away from MH a few years ago as her doctors didn't believe they needed to consider this medical family history because it was only a cousin and she lived in England not the USA like us.

There's a suspicion that one of my great-grandmothers may have also passed away from MH but that's just speculation as we don't have access to those medical records.


by: Robert Walkley
on 12/16/2009 at 1:14:49 AM

I was 16 in 1969 and had knee surgery. A simple hour and half surgery. My heart stopped twice and I was in a coma. I had a 110 plus temp which resulted in 80% of my liver damaged with blood in my kidneys. I was packed in ice for four days while in intensive care. I went into the hospital as an athletic 152 pounder being weighed four days later at a 107 pounds. This happen in Pascack Valley Hosp, NJ. They had no clue what happened except one out of seven doctors that were called in didn't give up and to him I owe my life too. I had the same ansethic when I was 5 and no reaction. They told me I would never play any sports again nor would I live a normal life? Well, I am 57 married with two daughters who we treat as if they have MH. I was a collegiate scholarship soccer player and I went into physical education and teach high aschool and coach varsity soccer today. My doctor atributed my excellent fitness and god to me being able to handle the extreme conditions I went Through.

In 1990 I needed to have two wisdom teeth removed. I called the MH foundation and they helped me find and orlal surgeon who had experience with MH patients and he happend to be 15 minutes from where I live. My wife is an OR nurse and she was confident that her hospital could handle my situation as they had a conference on MH patients 3 months prior. She mixes the Dantralene, which many nurses don't know how to do! I ahd the surgery there and they wre great. They took their time with me, explaining every step of prepartion of the room(precautions) to the actual proceedure.


by: Stephanie
on 4/13/2010 at 11:16:48 PM

My mom's youngest brother died during ear surgery in the mid 60's. My sister nearly died from it in the 70's during ear surgery. A cousin nearly died from it in the 80's during a c-section. Scary stuff. But I'd rather be one who knows it's a possibility than be one who doesn't.


by: Margaret Hassler
on 5/13/2010 at 5:12:39 PM

Dear Miranda:

In 1972 my nephew had and episode during surgery at Eienstein College of Medicine in New York. He was 4 yrs old. The request was that we have our blood tested for elevated CPK. Not only was it passed down to him but every single member of my family has had or continues to have an elevated CPK. Please make sure you get tested. it is worth your life and children. Thanks Marge


by: David
on 7/22/2010 at 7:10:52 PM

I had a 5 year old nephew that went for routine surgery and died of MH in 1971 at a hospital in upstate NY. I recommend that you definitely get tested.


by: Christine Masanz
on 8/7/2010 at 6:51:26 PM

My husband, Richard has had two family members die many years ago and it was said MH was the cause or contributing factor. About 25 years ago Richard and our son had a muscle biopsy at Mayo Clinic. Richard's test was positive and our son's was negative. Having this test was the best thing my husband and son have done for our family. We no longer have to assume they have it. As a result the doctors in our area (and hospitals) carry the appropriate drugs and know who they are treating and have taught us the appropriate way to handle emergency situations. We have tried to get other family members to be tested - but always an excuse. I would highly recommend having the biopsy done. Also, does anyone know if MH can cause any other genetic defects? I've heard people say they were sick and triggered an MH episode or their child has a genetic problem and it must be caused by the MH.


by: Jenna Langlois
on 8/23/2010 at 10:24:02 AM